Hello Everybody!
The last day in February is International Rare Disease Day! A time to find out about an interesting medical condition, or share your unusual and interesting uniquitude with the world.
https://www.rarediseaseday.org/
I am extremely hypermobile, as are some of my family, I have a slightly different thing, but they have a diagnosis of EDS or an Ehlers-Danlos Syndrome. It usually manifests as a combination of awesome superpowers and debilitating problems, and is a pretty strange mix.
We're generally super flexible, can take falls and impacts that would severely damage a regular human and just dislocate and pop back together like a cartoon (don't try that!), we have crazy fast twitch responses yet lack proprioception, so find it really really difficult to stand on one leg with our eyes shut. We have crazy high pain threshold for high level pain, such as dislocations or even severe compound fracture, things like that. But we sometimes have a very increased response to very low-level pain, for example knocking the back of the hand on a door-handle. (regular person equivalent is a funny-bone impact trauma). Disproportionate pain response. I have a niece who had double acetabular fracture when she was very young (that's leg sockets on the hips) and was walking around saying it felt a bit funny, after a few days of mentioning it felt weird, and her deciding that it was, in fact, painful (and sometimes very!) she was taken for x-rays - the doctor was shocked she'd been walking at all, nevermind happily playing with the other kids!
It's really interesting and not fully understood.
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/all-types/
So learn more about a rare disease (or syndrome in this case, what's the difference? I might try to learn that!)
And share with us your interesting experience with little known medical conditions.